StoryBank

Description:

StoryBank is an online collection of narratives from individuals with a family history of cancer and staff at the Cancer Genetics Service for Wales. The stories are organised into 10 key topic areas, covering issues such as: family history questionnaires, risk categories, genetic counselling, genetic testing, living with cancer. All stories are available as audio-visual files and you can also download the transcripts. The site was designed to provide information and support - allowing you to hear about experiences of other people. Links to useful information are also provided, targeted at UK residents.

Service URL:
Agency Responsible:
Cancer Genetics Service for Wales (CGSW).

Details

Format:
Website.
Intervention Type:
Educational (primarily educational material or psychoeducation).
Course Length:
Long (more than 5 modules).
Support Option:
No support.

Target Audience

Primary Category:
Physical Health. Cancer (people with a family history of cancer)
Target Audience:
Adult.
Language:
English.

Access

Fee:
Free.
Access:
Open: No registration required.
Contact Details:

rachel.iredale@tenovus.org.uk

Research evidence

Research Trials:
0
Research RCTs:
0
Outcome Summary:

No research evidence is currently available relating to the effectiveness of the site. The papers cited below detail the development of StoryBank and the involvement of people affected by cancer. A user evaluation survey is also incorporated into the site - and findings will be reported in the future.

Recommended rating, reviewer 1:

There is no evidence at the moment.
Recommended rating, reviewer 2:

There is no evidence at the moment.

Read more about Beacon's Smiley Rating System.

Research paper citations

Additional references:
Iredale, R., Mundy, L. Hilgart, J. (2011) An online resource of digital stories about cancer genetics: qualitative study of patient preferences and information needs. Journal of Medical Internet Research. 13(3): e78.

Iredale, R., Mundy, L., Marsden, D., Murray, A (2011) Patient involvement at the Cancer Genetics Service for Wales: meeting the long-term information and support needs of people at risk of inherited cancer. Patient Education and Counseling, 84(2): 280-1.

 

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Last Updated: November 26th 2012